Carers' stories
Louise – looks after her son who has autism - Bournemouth
"I look after my son (aged 14) who has severe autism and I’m a full time carer. His care involves everything you would do for a baby. His care is 24/7, I have to keep my eye on him all the time. He has aggressive behaviour and that is very challenging.
"I am a carer and that is my job so I’m more than just a mum and I think it’s important for other parents in my position to realise that although they may not be able to work they are working. Being a carer is a job and so I don’t think people should be worried about calling themselves carers. I feel very proud to be a carer and I will be doing all I can for the rest of my life as long as I’m able. I know some people think that being a carer carries a stigma and it’s something to be ashamed of but I think people should be proud, you’re not just doing a service for your loved one you’re doing a service to the community you live in.
"We’ve used the respite care breaks through the Carer’s Support Service, we were one of the first families to stay there and we really appreciated it and our older son and other family members really enjoy it. It’s a fantastic resource as it’s hard to get breaks away from caring.
"There’s a lot of benefits to signing up to the Carers’ Support Service. There’s a lot of activities and it’s also a social thing, often you lose your social life when you become a carer. It allows you to have a bit more of a life than you thought you’d be able to."
Sue – looks after her elderly mother and supports her father - Bournemouth
"After my mother came out of hospital in a wheelchair she needed more care. I’ve been caring for my mother whilst still trying to work and I look after both my mother and father to try and lead an independent life as they can.
"I’m almost like a care manager so I look for opportunities to help my mother. For example, I’ve arranged for her to have hydrotherapy to help keep her moving, keep her healthy and keep her out of hospital. My dad is in his eighties and without the carers’ support service he would be home alone and wouldn’t know about all the support available. My dad loves the carers’ lodge in Weymouth and he loves the carers’ evenings where he can take my mum as well because these events make him feel happy and confident.
"Being a carer is a job that many people don’t think they’ve got. I’ve found I’ve had to learn a lot of things as I’ve gone along and you don’t necessarily have all the skills needed and as a carer you can feel quite vulnerable. The carers’ support service has been a big help. I’ve been on a funded first aid course, you can phone them up and they’ve given my dad support.
"If you’re unsure whether the carers’ support service is for you, speak to them first. They are good at signposting, for listening to you, and sometimes to help you realise that something shouldn’t be happening and what situations can be helped.
"It’s very hard for carers like myself. My situation can be difficult because although my father looks after my mother he doesn’t always seek information and help and yet he is making many of the important decisions about my mother’s care and I have to be the one that sometimes questions things and seeks out the right help and support."
Jacqueline – Looks after her sister with severe learning disabilities - Poole
"I look after my sister who has severe learning difficulties.
"The carers’ support service has been brilliant, they’ve listened to all my rantings and ravings and they’ve reassured me that things will be ok. The carers’ discount card is great and the events are terrific. If I didn’t have the opportunity to get out occasionally I’d go mad. I love the carers’ choir it’s great fun and we go and sing in different venues including care homes.
"I’d recommend that people sign up and register as a carer because once you’re registered some of the stress can be taken off you. There are people who are more than willing to help, but if they don’t know you’re there, they can’t help. You’ll have a whole set of resources and know how to go about it, and where to go. The problem sometimes with being a carer, is although I have loads of friends, they don’t always understand what it’s like being a carer. Whereas, when I’m with other carers and I’m having a bad day I get a hug and reassurance and they understand.
"Carers have a really rough end of the deal, we’re unpaid, not respected and we plod on regardless and most of the time when a carer says they’ve done enough they’ve already done 110%. It’s important that carers aren’t pushed to breaking point and that there’s help for them."